PT Seeks Input Helping a Child with Torticollis

Jill Posts:

DEAR ERI COMMUNITY:

Hello, I am working with a child with Goldenhar Syndrome and significant right torticollis. I have been working with him for almost a year, and we have had phases of the neck alignment improving, but seems to have plateaued more recently. He is now 16 months old, and quite resistant to any stretching, and most handling. His family is great and tries to incorporate what they can into the daily routine, but of course his tolerance for this is poor, as he’d prefer to be up walking. His passive range of motion is pretty good, with his primary limitation being rotation. But he consistently maintains a 45 degree head tilt during play. He has a TOT collar which helps quite a bit, but limits his rotation, and encourages him to rotate to the left. In addition, once it’s removed, his tilt becomes even worse. We have tried kinesiotaping, but his skin is very sensitive and he did not tolerate it.

I would love any suggestions/treatment ideas people may have for working with a child of this age with torticollis. In the past, I have been able to discharge most of my kids with torticollis around a year. I feel like we have tried everything with this little guy, but we just aren’t having a lot of success.

Thank you!!!

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Evidence Based Practice: How Are You Measuring Outcomes

SPEAKER BLOG SERIES:

[caption id="attachment_1838" align="alignleft" width="160" caption="Suzanne Davis"]Suzanne Davis[/caption]

Suzanne Davis

As therapists we are constantly challenged to use evidence-based practice (EBP) to provide services to our clients.  The definition of EBP is threefold, including (Sackett, et al, 2000):

  • Best research evidence
  • Clinical expertise
  • Patient and family values

Considering the three components of EBP, therapy has been particularly lacking in the area of research.  Conducting high-level research is difficult for many reasons.  One of the issues is finding outcome measures that are sensitive enough to measure the changes that the children with neuromotor and sensory dysfunction make. 

What tools are you using to show measurable change in the children’s outcomes? Share them here

The next entry from Suzanne will discuss new research.

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Any Advice: Child Having Trouble Switching from a Posterior Walker

MEAGAN POSTS:

DEAR ERI COMMUNITY: I have a high school student with cerebral palsy who is using ad UP and Free walker. He has been using it now for about 4 months. He continues to struggle with controlling it even when he holds on. HE was completely independent with a Kay posterior walker but now needs help even with steering and initating movement with this walker. Does anyone have any experience with this or any links to research? Any help is much appreciated!

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An Experts Response to the Tummy Time Question:

Ask an expert:

 

[caption id="attachment_1793" align="alignleft" width="151" caption="Barbara Hodge"][/caption]

Barbara Hodge, PT, Coordinator-Instructor Pediatric NDT

Q. Is there value of “tummy time” for children with neuromuscular issues?

 I do say for many children with neuromuscular issues the floor is not their friend.

 The value of tummy time for typical children is undisputed. Among other things it helps elongate and activate the abdominals, especially the obliques, it gets mobility of the rib cage/ ribs to spine. It lengthens hip flexors as they extend away from the floor and activates the gluts, develops the secondary curves of the spine, and the one we focus so much on, shoulder girdle alignment and stability, early formation of the hand arches for fine motor, with appropriate scapular depression and adduction.

The documentation of the benefit of tummy time on plagiocephaly and also torticollis is all there, not mention all the sensory systems that are vital for development.

However, when we put the children we treat in prone on the floor we need to ask ourselves which of the above is being promoted by putting them there.

Are they getting what we want, or are they in fact reinforcing the very impairments we are trying to minimize. If what we see, particularly with the hypertonic children, is increasing  adduction/internal rot of the humerus/ winging of the scapulae , the head in hyperextension, thoracic spine in flexion and the thoracic-lumbar junction in hyperextension, and adduction/internal rotation of the lower extremities, then compulsory tummy time , as in prone on the floor, is not a good plan.

 For those with hypotonia who melt into the floor, lifting the head from this position (prone) is hard. Having them in upright and pushing their hands into the surface is a place they can often get some activation and is therefore a better position to begin in.

We definitely need to work on all the same components that typical children do when on the floor, but we need to find alternatives, such as on the therapist’s lap, on the ball, held supported against the mother, and pushing away from that surface etc. The foundation of much of our handling techniques will be in places where we can help them get alignment and activation for developing function.

In general, I think that if a technique or position works it’s fine to  use, but what we need to emphasize is the observation and analysis skills to be able to ask: why are you doing this, are you getting what you want, and if not, how can you modify it to be productive?

I get many mothers who tell me that take the message that they have from therapists is that their child must be placed in prone on the floor as tummy time is vital. The components of tummy time are vital, but we would promote the thought that they often cannot be successfully achieved in prone on the floor, and may in fact be detrimental for their particular child.

We welcome your thoughts and experiences

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Occuaptional Therapist – Pilot Study – The Effectiveness of Interventions to Increase In-Seat Behavior

We wanted to share this pilot study from an Occupational Therapist.

What are your thoughts?

Efficacy of Sensory-based Interventions for Children with Autism Spectrum Disorders: A Pilot Study An Occupational Therapist working in a pre-school program used the SymTrend data collection app to collect data about a student’s out-of-seat behavior during circle time activities. She wanted to record and report data about the effectiveness of interventions she was going to try to increase in-seat behavior. The child was in a substantially separate classroom for children with ASD ages 5-6 years. Her study demonstrated the effectiveness of her sensory-based intervention to increase in-seat behavior. 

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